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Lupus Care for Kidneys (LuCKy) Gathering: Being Grateful and Lucky |
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Written by Dr. Millicent Tan-Ong
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Sunday, 04 July 2010 |
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Saturday, July 03, 2010 was a special day for patients with lupus nephritis. Prof. Sandra Navarra opened the session by informing the audience that third year medical students have been invited to learn from the lupus patients. Lupus patients were invited to participate in becoming “lupus patient partners” to help teach medical students about lupus. Prof. Navarra shared some real-life experiences of lupus patients and their caregivers, using these examples to inspire and encourage the patients. Likewise, Prof. Navarra shared the insights of the third year students who participated in previous meetings with lupus patients. She expounded on how love can overcome anything, on how important family support is and how grateful we should be despite the challenges. The third year medical students were reminded that doctors should remain humble as medical science does not have all the answers. She challenged them further to do their best to learn on their own as they will be the future doctors of the lupus patients. Mrs. Sylvia Reyes, one of the lupus patient partners, spoke on behalf of the patients, to thank Prof. Navarra for organizing the session.
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Last Updated ( Friday, 09 July 2010 )
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The LUISA Project invites patients with Lupus nephritis... |
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Written by Lupus ph Administrator
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Tuesday, 22 June 2010 |
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The LUISA Project invites patients with Lupus nephritis to a special session on "Lupus and the Kidneys":
Date: Saturday, 03 July 2010 Time: 9:00 AM to 12 NN
(Note:"Sharing" by patients at support group meeting will follow from 12 NN to 2:00 pm) Venue: Angelo King Audiovisual Room, 2F UST Hospital Clinical Division Agenda: 1. Updates on lupus nephritis management 2. The Filipino Lupus Nephritis database 3. Assessment / screening for POSSIBLE medical assistance* * Patients needing medical assistance must bring the following: a) USTH Clinical Division "yellow card" b) "My lupus story" c) Organized folder or "clear book" with copy of all
lab/xray/ultrasound tests (in proper sequence) including kidney biopsy d) Barangay certificate of indigency For further details call 7499746, ask for a Rheumatology fellow.
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Last Updated ( Thursday, 24 June 2010 )
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Monique: A Celebration of Life at 13 |
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Written by Lupus ph Administrator
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Sunday, 13 June 2010 |
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 June 5 , 2010 marked a significant day, not only in the life of Monique, but of the number of family and friends who witnessed an event dubbed A Celebration of Life at 13. Monique Estrella celebrated her natal day and hosted her second solo Painting Exhibit. More than 30 oil artworks were put up on exhibit at the Madrigal Center, Alabang, Muntinlupa. Monique and brother Nicolai, and other various children, including the Children’s Joy Foundation, showed their talents in music and dance. Professional artists Jun Alfon and Lito Mondejar showed portraiture with Monique as their stunning subject, followed by an Art Talk by Mr. Mondejar to enlighten the guests that we all have the talent in ourselves and that art is in everything. For the younger guests, Yoyo Master Glenn Angeles showed his prowess in his yoyo exhibition. Another highlight of the event was the donation of Monique’s Little Mermaid oil painting on 3’ X 4’ canvas to the Pediatric Ward of the University of Santo Tomas Hospital Clinical Division. It was received by Dr. Christine Bernal, Monique’s Pediatric Rheumatologist. A truly moving moment was when the guests started passing the hat (box) and voluntarily gave out of the abundance of their hearts in support of Dr. Bernal’s fund-raising project for the indigent patients of rheumatic illnesses, such as Systemic Lupus Erythematosus and Juvenile Rheumatoid Arthritis. Dr. Bernal went home with a generous amount of donation and an oil painting that aims to inspire other children patients. It was indeed a significant day of celebration of life of showcasing talent, entertainment, and more importantly, giving and sharing.
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Read more...
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Does Lady Gaga have Lupus? |
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Written by Lupus ph Administrator
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Saturday, 05 June 2010 |
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 Lady Gaga is taking extra precautions to ensure she’s healthy after learning she tested “borderline positive” for lupus.
The “Bad Romance” star underwent testing for lupus, the affliction which killed her aunt Joanne, after a string of health problems in recent months, including breathing difficulties, stress and headaches. Her results showed she is not currently suffering from the condition but doctors have ordered the singer to look after her body to prevent any symptoms flaring up.
In a pre-recorded chat with Larry King, Gaga explains, “Lupus is in my family and it is genetic. My mother told me the other day that my fans were quite worried about me because I did talk about the fact that I was tested for lupus. The truth is I don’t show any signs, any symptoms of lupus. But I have tested borderline positive for the disease. As of right now I do not have it, but I have to take good care of myself.” Sources:
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Last Updated ( Saturday, 05 June 2010 )
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