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My Lupus Story

Nothing is Impossible with God
How will you feel if your doctor will tell you that you have SLE (Systemic Lupus Erythematosus) and there’s no cure on it? In 2002, I was 19 years old, on my 2nd year college when I had hematoma on my legs and I easily get tired so I went to see a hematologist to find out what was it.
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Letter from a Butterfly

Today I Saw Myself


Today I saw myself as I was many years ago,
fraid to think of what tomorrow’d bring, why was this so?
In eyes wet with tears of feeling, Lord, why should it be?
Why should I be so ill like this; oh, why should it be me?

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Autoimmunity Congress Asia (ACA) 2011: The Singapore experience
Written by Ramon Miguel M. Molina   
Wednesday, 11 January 2012

The fifth installment of a series of scientific meeting spearheaded by Professor Yehuda Shoenfeld was recently held in Singapore last November 17 to 19, 2011.

 

 November 17, 2011: The official opening of the Autoimmunity Congress Asia.

Last Updated ( Wednesday, 25 January 2012 )
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LUPUS CLINICS 2011
Written by Robelle Tanangunan   
Friday, 09 December 2011


Systemic lupus erythematosus is a very demanding disease. It needs continuous monitoring in order to prevent flare-ups or complications.  Rheumatology OPD clinics has been rescheduled, from Saturdays to weekdays. Rheumatologists feel that this would lessen compliance and follow-ups on the part of the patients. Thus, the Section of Rheumatology, Clinical Immunology and Osteoporosis and the Lupus Inspired Advocacy (LUISA) organized a once-a-month free "LUPUS CLINICS" for patients, especially for indigent ones. Aside from clinical consultations with rheumatologists, they held a group sharing and discussion among the patients and caregivers.

REGISTRATION

  

CONSULTATION

  

 

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Ten Topics in Lupus Asia
Written by Sorrah Fiel Briones   
Thursday, 24 November 2011
Ten 10 Topics Lupus in Asia 2011


The Ten Topics in Lupus Asia was held at the Harbour Grand Hotel in Hong Kong, last September 24-25, 2011.  Currently on its 25th year (from the first Ten Topics in Rheumatology in London) and the 3rd Ten Topics – Asia (from the first Ten Topics in Rheumatology – Asia in Singapore), the conference focused on Lupus, with internationally renowned experts including  Prof. Graham Hughes and Dr. Michelle Petri.  The conference gave the trainees the chance to interact with the experts and gain valuable advice.  The programme director of this successful event was Prof. Lau Chak Sing (HongKong), with the dynamic leadership of Prof. Feng Pao Hsii (Singapore) who also presented the LifeTime Achievement Award in Lupus to Prof. Chen Shunle (China).

The event was well represented by the Filipinos.  Our own mentor, Prof. Sandra V. Navarra, was one of the 16 distinguished speakers.  She enlightened the audience with anti-BAFF therapy for lupus, and one of the discussants in the Challenge the Professors session.  There were 9 Filipino delegates, including 3 rheumatology fellows:  Drs. Ma. Rica Salgado, Marian Esther Galdones, and Sorrah Fiel Briones.  The fellows had worked overtime in coming up with 2 posters entitled:  Clinical Profile and Outcomes of Filipino Lupus Patients with End Stage Renal Disease and Reasons for Hospitalization of Patients with Systemic Lupus Erythematosus.  They also had 2 cases for oral presentation in the “Challenge the Professors” entitled:  Deep Venous Thrombosis in SLE with Antiphospholipid Antibodies and Digital Gangrene and Renal Failure in SLE following a Febrile Episode and Hypotension, which enabled exchange of clinical practices of experts across the world.

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do you have lupus?
Written by Lupus ph Administrator   
Wednesday, 26 October 2011

Last Updated ( Wednesday, 26 October 2011 )
 
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