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Lupus Philippines

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My Lupus Story

Nothing is Impossible with God
How will you feel if your doctor will tell you that you have SLE (Systemic Lupus Erythematosus) and there’s no cure on it? In 2002, I was 19 years old, on my 2nd year college when I had hematoma on my legs and I easily get tired so I went to see a hematologist to find out what was it.
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Letter from a Butterfly

Today I Saw Myself


Today I saw myself as I was many years ago,
fraid to think of what tomorrow’d bring, why was this so?
In eyes wet with tears of feeling, Lord, why should it be?
Why should I be so ill like this; oh, why should it be me?

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Summary report on Asian Lupus Summit, The Patient the Artist, 28-30 November 2012
Written by Lupus ph Administrator   
Monday, 27 May 2013
Please click the image below to download the PDF format of the summary report:
Last Updated ( Monday, 27 May 2013 )
 
Asian Lupus Summit 2012
Written by Lupus ph Administrator   
Friday, 09 March 2012

 
29-30 November 2012 - Manila
Save the date!
 
visit asianlupus.org for
details and updates
 
 
 
Last Updated ( Wednesday, 02 May 2012 )
 
PEARL forum: Living Well
Written by Melissa Aquino-Villamin, MD   
Saturday, 02 June 2012

PEARL (People Empowerment for ARthritis and Lupus) forum was held last 11 March  2012 at St. Luke's Medical Center, QC,  CHBC 14th floor Auditorium II.  Around 110 participants came, consisting of patients with lupus and inflammatory arthritis together with their caregivers.  Hosted, by the SLMC fellow Dr. James Bermas, the group was divided into four small groups, with 3 facilitators per group: one patient and 2 rheumatology fellows.  Guided by questions, each group is tasked to share their thoughts regarding the people they trust and the qualities that they admire..  At the end of the group sharing, a summary of their answers were discussed with the big group.  

Unforgettable and inspiring statements from the patients:
“I can be trusted because:
-    My faith is strong
-    I am a good listener
-    I fulfill my promise
-    I can relate
-    I am stronger than I look”

 

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Lupus ... on island
Written by Lacee A.C. Martinez Pacific Daily News (guampdn.com)   
Saturday, 02 June 2012

Learn how an 8-year-old Filipino Leani Castro discover lupus in Guam and how her journey can help raise awareness on an island.

click here to read more...

Photo and article source: guampdn.com

Last Updated ( Saturday, 02 June 2012 )
 
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