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My Lupus Story

Nothing is Impossible with God
How will you feel if your doctor will tell you that you have SLE (Systemic Lupus Erythematosus) and there’s no cure on it? In 2002, I was 19 years old, on my 2nd year college when I had hematoma on my legs and I easily get tired so I went to see a hematologist to find out what was it.
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Letter from a Butterfly

I choose to be happy
Dear Dr. Navarra:

I wish to express my gratitude for the support and encouragement you have always given me as your patient, especially when i competed for and won the Happiest Pinoy award. 
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Search for happiest Pinoy: No worries for man always on sickbed
Written by BusinessMirror   
Tuesday, 16 February 2010

winston abella maxinoARGUABLY, it is easier to be happy when one has many things to be happy about. And a person in the midst of suffering tends to lose faith and give in to sadness.

Winston Abella Maxino, 47, has been, for the longest time, contradicting these statements. Humor and infectious laughter are his best “weapons,” empowering him to rise above the medical challenges in his life.

The eighth of nine children, Winston was born and raised in Dumaguete City, Negros Oriental. For most of his life, he suffered from severe asthma and allergy attacks. There were times when he had to be brought to the hospital and be confined for half the total number of school days.

The surest way for him to get rid of the physical pain was to make people laugh by cracking jokes and playing tricks on them. He always felt he was on the verge of death and with those simple gestures, he could leave a mark in case he would die soon. People would remember him as the “poor boy” who mastered the art of making people happy.

Even while faced with serious medical conditions, Winston was born to be an achiever. At 11, he became the “Little City Mayor” in Dumaguete City and performed mayoral duties for a week. He got elected as the youngest kagawad representing the youth sector of the city when he was still studying in Silliman University in 1980.

He completed  BS Political Science, cum laude, despite his busy schedule as a public servant. He carried the distinction of being the only college student of Silliman University who was the grand slam recipient of the Most Outstanding Student of the Year in his four years in college.

Search for the happiest pinoyWinston’s condition could have been an easy excuse for him to stay in the background and live in self-pity, but it only made him more determined to go beyond his limits.

From 1984 to 1988, he pursued his ambition to become a lawyer like his father and two older siblings at the Ateneo de Manila University. Law school tested his endurance with sleepless nights of studying that led to worse asthma attacks. His strong will and hard work paid off when he graduated with Distinction for Honor Scholarship.
Last Updated ( Tuesday, 23 February 2010 )
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New Year Greetings!
Written by Millicent Ong, MD   
Saturday, 02 January 2010

Thanks and Welcome the Year of the Tiger!

Dear Friends,

Happy New Year!  

When we greet someone “Happy New Year”, what we actually want to say are the following:

We are grateful for being alive today.

We are grateful for the many blessings that we received the previous year.

We are thankful for overcoming the obstacles, challenges that came our way in the past year.

We are thankful for the hope and opportunities that the new year brings.

In behalf of the staff and contributors of our three websites, www.retfi.org , www.lupus.ph and www.luisaproject.org :

we thank God for the opportunity to serve doctors, their patients and caregivers through the information provided in our websites;

we thank Prof. Tito Torralba for the inspiration and mental stimulation he continually provides to his colleagues and trainees;

we thank Prof. Sandra Navarra for the support and guidance she generously provides to her colleagues and trainees;

we thank Mr. Wilfred Villarruz and Mrs. Pia Villarruz for diligently updating our websites and patiently answering patient queries;

we thank all our contributors for making our websites informative and interesting;

we thank you for patronizing our websites for the past five years since 2005;

we thank you for allowing us to serve you better in the years to come, with the addition of quarterly newsletter, which is meant to serve those without steady internet access.

Let’s confidently and eagerly welcome the new Year of the Tiger with our firm determination and fervent prayers that it will be peaceful, blessed and fun-tastic for all of us! Cheers!

Sincerely,

Millicent Ong, MD

 
Many Faces of SLE Workshop
Written by Lupus ph Administrator   
Monday, 28 December 2009

The Rheumatology Section of the University of Santo Tomas (UST) Faculty of Medicine & Surgery regularly  conducts a workshop on “the many faces of SLE” as part of the curriculum for third year medical students rotating in Medicine II – Module 4.

The workshop aims to increase the awareness of medical students to the “humane” aspect of SLE , by actual interaction with  SLE patients who share stories of their battle with lupus and ways by which they cope with their illness. The feedback from students has been very encouraging (attached). Likewise for the participating patients, this novel interaction with medical students made them realize the impact and inspiration of sharing their life stories on the education of these young minds. Such learning experience cannot be obtained from the medical books.

These special encounters are made possible by the Lupus Inspired Advocacy (LUISA) Project of the Rheumatology Educational Trust Foundation, Inc.

Download the Slides here.

 
Let's Band for Arthritis and Lupus - A Patient Enlightenment Workshop
Written by Lupus ph Administrator   
Wednesday, 16 December 2009

29 November 2009
AMV College of Accountancy Multi-Purpose Hall
University of Santo Tomas, Manila


A PATIENT ENLIGHTENMENT WORKSHOP for both systemic lupus erythematosus (SLE) and Rheumatoid Arthritis (RA) patients was held last 29 November 2009 at the UST College of Accountancy Multi-purpose Hall. The workshop was based on the principle of “ILLNESS TRAJECTORY MODEL”, in consonance with the belief that the patient’s improved well-being and quality of life will depend on the intervention (medical or psychological) provided. It also aims to enlighten both patient and caregiver on the deeper understanding of their illness, providing them an opportunity to be in control of their illness.

Dr. Marthony Basco, a pediatrician who has been involved in group dynamics and training program sessions, designed the mechanics, questionnaires and procedures used in the activity, and provided overall supervision.


The Lupus workshop was held in the morning participated by 60 patients and caregivers. The afternoon slot was for chronic rheumatoid arthritis attended by 46 patients and caregivers.

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